YOUTUBE star Adalia Rose has died after battling real-life Benjamin Button disease.
The 15-year-old internet sensation was diagnosed with Hutchinson-Gilford progeria syndrome – a genetic condition that affects less than 500 children around the world – as a baby.
Along with rapid premature aging, Adalia also suffered from hair loss, lack of body fat, prominent veins, a high-pitched voice and severe stiffness in her joints.
The star reportedly died on January 12 as a result of the condition, the Daily Star reported.
The family said in a Facebook post: “January 12, 2022 at 7pm Adalia Rose Williams was set free from this world. She came into it quietly and left quietly, but her life was far from it.
“She touched MILLIONS of people and left the biggest imprint in everyone that knew her. She is no longer in pain and is now dancing away to all the music she loves.
“I really wish this wasn’t our reality but unfortunately it is. We want to say thank you to everyone that loved and supported her.
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“Thank you to all her doctors and nurses that worked for YEARS to keep her healthy. The family would now like to mourn this huge loss in private.”
First diagnosed at just three months old, Adalia’s mother Natalia Pallante, 29, said doctors first noticed something was wrong within the first four weeks of the little girl’s life.
Concerned about Adalia’s lack of “growth”, the then single mum also recalls how the “skin on her tummy was really tight and just different looking.”
Two months later, Natalia was left devastated by the life-changing diagnosis and remembers how “it was just her and I and I honestly felt lost.”
It was also around this time that Adalia “started losing her hair and her little veins started showing up more and her skin started thinning out a lot more.”
The young star shared her journey on social media, and amassed over 2.91million subscribers on YouTube.
Her last video was released just one month ago, titled “Meet Baby Luka.” It received 303,000 views.
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